Rare Disease Day

114 email addresses found for rarediseases.org

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114 email addresses
http://blog.rarediseases.org/genzyme-and-nord-establish-program-to-help-undiagnosed-patients-with-rare-diseases April 4, 2015
http://businesswire.com/news/home/20130719005765/en/u.s.-conference-rare-diseases-orphan-products-focus May 5, 2017
http://businesswire.com/news/home/20130719005765/en/U.S.-Conference-Rare-Diseases-Orphan-Products-Focus May 5, 2015
http://stage-rarediseasessite.azurewebsites.net/genzyme-and-nord-establish-program-to-help-undiagnosed-patients-with-rare-diseases August 8, 2017
http://myelitis.org/category/education-awareness-events/page/3 February 2, 2016
http://archive.constantcontact.com/fs184/1102602054989/archive/1111746247457.html January 1, 2015
http://lgdalliance.org/2011/07/news-old-site August 8, 2017
http://photos.prnewswire.com/prn/20130129/dc49655 March 3, 2016
http://heatherkirkwood.blogspot.com/2009/02/get-ready-for-rare-disease-day.html September 9, 2017
http://photos.prnewswire.com/prnthumb/20110719/dc37656logo-b March 3, 2016
http://news.genzyme.com/press-release/genzyme-and-nord-establish-program-help-undiagnosed-patients-rare-diseases January 1, 2015
http://breath-of-hope.blogspot.com/2009/02 August 8, 2017
http://breath-of-hope.blogspot.com/2009/02/millions-around-world-to-observe-rare.html August 8, 2017
http://news.genzyme.com/print/node/2960 February 2, 2016
http://kennedykrieger.org/content/millions-around-world-observe-rare-disease-day July 7, 2017
http://myelitis.org/transverse-myelitis-association-join-nord-observing-rare-disease-day July 7, 2017
http://frontlinemedcom.com/2nd-annual-rare-neurological-disease-special-report July 7, 2017
http://msud-support.org/index.php/component/content/article/576-orphan-drug-act July 7, 2017
http://myelitis.org/category/education-awareness-events/page/4 July 7, 2017
http://breath-of-hope.blogspot.in/2009/02 October 10, 2017
http://prnewswire.com/news-releases/nord-to-honor-rare-disease-innovators-119850989.html January 1, 2015
http://msud-support.org/index.php/newsletter/111-volume-31-1/576-orphan-drug-act March 3, 2016
http://multiplesystematrophy.org/blog/interview-opportunity-for-msa-patients-or-relatives-deadline-nov-2-2012 November 11, 2015
http://phrma.org/news-media/related-resources/volunteer-health-agencies May 5, 2015
http://rarediseaseday.org/press-contact/ November 11, 2015
http://photos.prnewswire.com/prnthumb/20110719/DC37656LOGO-b May 5, 2015
http://kennedykrieger.org/overview/news/millions-around-world-observe-rare-disease-day April 4, 2014
http://sigmatau.com/news/raredisease.asp January 1, 2016
http://myelitis.org/education-awareness-events/transverse-myelitis-association-join-nord-observing-rare-disease-day February 2, 2016
http://ulf.org/medical-and-scientific-advancements July 7, 2015
http://rarediseases.org/for-patient-organizations/join-membership-network/apply-for-membership October 10, 2016
http://stage-rarediseasessite.azurewebsites.net/get-involved-in-your-state-on-rare-disease-day September 9, 2017
http://rareaction.org/rare-action-network-news/free-rare-action-network-meetings-carolinas-september September 9, 2017
http://rarediseases.org/get-involved-in-your-state-on-rare-disease-day February 2, 2016
http://rarediseases.org/for-patient-organizations/current-members/regional-meetings September 9, 2017
http://cvent.com/events/nord-s-rare-action-network-luncheon-meeting-columbia-south-carolina/event-summary-d719c3af69a141a0b2f189ab631eee44.aspx September 9, 2017
http://rddus.azurewebsites.net/get-involved/proclamations-project August 8, 2017
http://mddsfoundation.blog/2016/01/04/raise-your-voice-rarediseaseday-2016-is-coming April 4, 2017
http://rarediseases.org/rare-disease-day-2016-theme-and-slogan-announced February 2, 2016
http://rddus.azurewebsites.net/events/advocacy-events August 8, 2017
http://rarediseases.org/for-patient-organizations/current-members/webinar-series February 2, 2016
http://stage-rarediseasessite.azurewebsites.net/rare-disease-day-2016-theme-and-slogan-announced September 9, 2017
http://cvent.com/events/nord-s-rare-action-network-luncheon-meeting-raleigh-north-carolina/event-summary-aca06e0779ee4dad9e9e3b376470cfcb.aspx September 9, 2017
http://rareaction.org/events/upcoming-events/south-carolina-rare-action-network-luncheon October 10, 2017
http://rareaction.org/events/upcoming-events/north-carolina-rare-action-network-luncheon-meeting October 10, 2017
http://rarediseaseday.us/get-involved/proclamations-project October 10, 2016
http://cvent.com/events/nord-s-regional-membership-luncheon-meeting-new-york-city-ny/event-summary-928cefbe6cdc49899ca609725a6ad527.aspx August 8, 2017
http://fibrousdysplasia.org/category/foundation-news December 12, 2016
http://kennedykrieger.org/overview/news/kennedy-krieger-institute-supports-rare-disease-day August 8, 2017
http://stage-rarediseasessite.azurewebsites.net/the-morgan-leary-vaughan-fund-launches-first-natural-history-registry-for-necrotizing-enterocolitis August 8, 2017
http://prnewswire.com/news-releases/leading-patient-advocacy-groups-stand-together-to-oppose-american-health-care-act-300448714.html August 8, 2017
http://stage-rarediseasessite.azurewebsites.net/syngap-education-research-foundation-launches-largest-ever-study-of-syngap1 August 8, 2017
http://stage-rarediseasessite.azurewebsites.net/nord-issues-statement-on-houses-approval-of-21st-century-cures-initiative August 8, 2017
http://rarediseases.org/contact-us/ August 8, 2015
http://run4cmt.blogspot.fr/2016_02_01_archive.html July 7, 2017
http://rarediseaseday.org/association/14 December 12, 2016
http://fibrousdysplasia.org/author/dportero December 12, 2016
http://rarediseases.org/about/contact-us April 4, 2016
http://marketwired.com/press-release/senate-passes-landmark-21st-century-cures-act-2181609.htm July 7, 2017
http://rarediseases.org/syngap-education-research-foundation-launches-largest-ever-study-of-syngap1 August 8, 2017
http://georgiapku.org/georgia-advocates-hold-important-advocacy-event-rare-disease-day March 3, 2017
http://selecthealthnetwork.com/aggregator/sources/1 May 5, 2017
http://news.usaonline.us/press-releases/running-for-rare-named-an-official-charity-partner-of-the-2016-tcs-new-york-city-marathon-set-for-sunday-november-6-2016-30053 October 10, 2016
http://rarediseases.org/orphan-drugs-represent-41-percent-of-all-new-medications-approved-by-fda-in-2016 July 7, 2017
http://fibrousdysplasia.org/fibrous-dysplasia-foundation-nord-launch-cutting-edge-study-fibrous-dysplasiamccune-albright-syndrome December 12, 2016
http://insurancenewsnet.com/oarticle/eighty-seven-organizations-call-on-congress-to-protect-medicaid March 3, 2017
http://selecthealthnetwork.com/aggregator May 5, 2017
http://newsroom.heart.org/news/eleven-major-patient-groups-outline-joint-position-on-health-care-reform July 7, 2017
http://businesswire.com/news/home/20170320006234/en/eighty-seven-organizations-call-congress-protect-medicaid July 7, 2017
http://rarediseases.org/contact-us February 2, 2016
http://bioportfolio.com/news/article/3068290/eighty-seven-organizations-call-on-congress-to-protect-medicaid.html August 8, 2017
http://stage-rarediseasessite.azurewebsites.net/nord-amicus-brief-orphan-drug-act August 8, 2017
http://femexer.org/8070/wall-street-journal-publica-una-carta-al-editor-de-nord November 11, 2016
http://connexionhealthcare.com/uncategorized/rare-disease-advocates-raise-important-awareness-pennsylvania-state-capitol-building-rare-disease-day-tuesday-february-24-2015 April 4, 2016
http://fibrousdysplasia.org/category/foundation-news/research-news December 12, 2016
http://fibrousdysplasia.org/fibrous-dysplasia-foundation-supports-rare-disease-day-official-us-partner March 3, 2017
http://prnewswire.com/news-releases/patient-services-inc-supports-rare-disease-day-and-joins-global-movement-to-raise-important-awareness-for-rare-diseases-300040378.html October 10, 2016
http://wikinvest.com/stock/corcept_therapeutics_(cort)/news/3818067/corcept_therapeutics_announces_first_quarter_results_and_corporate_and_development_update July 7, 2015
http://cushingsmoxie.blogspot.com/2014_02_12_archive.html September 9, 2017
http://cushingsmoxie.blogspot.com/2014/02/national-organization-of-rare-diseases.html November 11, 2017
http://cushingsmoxie.blogspot.com.tr/2014/02/national-organization-of-rare-diseases.html September 9, 2017
http://cushingsmoxie.blogspot.com/2012/04/cushing-patient-assistance-program.html December 12, 2017
http://cushingsmoxie.blogspot.com/2014/02 September 9, 2017
http://biospace.com/article/releases/corcept-therapeutics-inc-announces-first-quarter-results-and-corporate-and-development-update-459809 November 11, 2017
http://stage-rarediseasessite.azurewebsites.net/for-patients-and-families/help-access-medications/patient-assistance-programs-2 September 9, 2017
http://cushingsmoxie.blogspot.com/2012_04_10_archive.html November 11, 2017
http://csrf.net/author/elissa August 8, 2017
http://csrf.net/disability-assistance/nord-patient-assistance-program March 3, 2017
http://csrf.net/category/disability-assistance March 3, 2017
http://rarediseases.org/for-patients-and-families/help-access-medications/patient-assistance-programs-2 October 10, 2017
http://csrf.net/resources/disability-assistance June 6, 2016
http://the-cavan-tommy-hoey-trust.org.uk/page3.php November 11, 2016
http://rarediseases.org/for-patients-and-families/help-access-medications/patient-assistance-programs February 2, 2017
http://corcept.com/news_events/rss September 9, 2015
http://cushingsmoxie.blogspot.fr/2012_04_10_archive.html September 9, 2017
http://cushingsmoxie.blogspot.fr/2012/04/cushing-patient-assistance-program.html September 9, 2017
http://biospace.com/news/corcept-therapeutics-inc-announces-first-quarter/258696 January 1, 2015
http://rarediseases.info.nih.gov/gard/9155/mental-retardation-x-linked-south-african-type/resources/5 July 7, 2015
http://webmd.com/children/tricho-dento-osseous-syndrome May 5, 2017
http://webmd.com/children/congenital-disorders-of-glycosylation-type-ia May 5, 2017
http://uwhealth.org/health/topic/nord/absence-of-corpus-callosum-schinzel-type/nord936.html May 5, 2015
http://rarediseases.org/rare-disease-information/rare-diseases/byid/1246/viewfullreport May 5, 2017
http://rarediseases.info.nih.gov/gard/23/blepharophimosis-ptosis-and-epicanthus-inversus-syndrome-type-1/resources/5 April 4, 2015
http://rarediseases.org/rare-disease-information/rare-diseases/byid/1137/viewabstract May 5, 2017
http://rarediseases.info.nih.gov/gard/6882/lemierre-syndrome/resources/5 July 7, 2015
http://rarediseases.org/rare-disease-information/rare-diseases/byid/9/viewabstract May 5, 2017
http://rarediseases.info.nih.gov/gard/1415/cockayne-syndrome-type-i/resources/5 April 4, 2015
http://cigna.com/healthwellness/hw/medical-topics/diffuse-idiopathic-skeletal-hyperostosis-nord826 April 4, 2015
http://ninds.nih.gov/disorders/myotoniacongenita/myotoniacongenita.htm August 8, 2015
http://arthritisconsult.com/what-is-polymyositis/ October 10, 2015
http://emedicinehealth.com/progressive_supranuclear_palsy-health/article_em.htm July 7, 2015
http://armc.com/armc-main/wellness/health-library/healthwise-document-viewer July 7, 2015
http://drstevenleibowitz.com/support-groups-for-blepharospasm-hemifacial-hemi-facial-spasm.html October 10, 2015
http://rarediseases.org/rare-disease-information/rare-diseases/byid/442/printfullreport May 5, 2017
http://drcfry.com/support-groups-for-blepharospasm-hemifacial-hemi-facial-spasm.html October 10, 2015
http://eyefacialplasticsurgery.com/support-groups-for-blepharospasm-hemifacial-hemi-facial-spasm.html October 10, 2015
http://healthcareconsultants.us/resources_hc.php October 10, 2015
http://webmd.com/a-to-z-guides/sneddon-syndrome May 5, 2017
http://lmh.org/wellness/health-library/document-viewer/ August 8, 2015
http://peacehealth.org/medical-topics/content/nord/nord460.html April 4, 2015
http://friedreich-s-ataxia-fact-sheet1.starshine1.aidpage.com September 9, 2017
http://mgmc.org/wellness/health-library/healthwise-document-viewer July 7, 2015
http://drjerrylai.com/support-groups-for-blepharospasm-hemifacial-hemi-facial-spasm.html October 10, 2015
http://cigna.com/healthwellness/hw/medical-topics/smith-magenis-syndrome-nord976 July 7, 2015
http://centracare.com/wellness/health-library/document-viewer July 7, 2015
http://conehealth.com/community/health-library/healthwise-document-viewer July 7, 2015
http://concordhospital.org/wellness-resources/health-library/healthwise-document-viewer July 7, 2015

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